Introduction and Overview of Multiple Myeloma

This program focused on patient perspectives and shared decision-making in the context of multiple myeloma, bringing together a panel that included a nurse practitioner, a patient living with the disease, and the patient’s care partner. The discussion emphasized the importance of understanding diverse viewpoints in managing this complex cancer. The patient and care partner highlighted their journey, including the transition from active work life to full-time advocacy and education to empower others with the disease. The collaborative role of the care team, especially the nurse practitioner, was emphasized as critical in supporting patients through treatment.

The clinical presentation of multiple myeloma varies widely. Some patients are asymptomatic, with the disease discovered through routine blood tests, while others present with severe symptoms such as bone fractures or kidney failure. This variability makes early detection and individualized care crucial. Family history slightly increases risk, but myeloma remains a relatively rare cancer overall. Certain populations, including African Americans, experience a higher incidence, though the reasons for this disparity are not fully understood. The median age at diagnosis is approximately 72 years, reflecting the disease’s prevalence among older adults.

Overall, the program highlighted how understanding patient experiences and involving them actively in decision-making can improve care quality. The perspectives shared underscore the emotional, physical, and social challenges faced by those living with multiple myeloma and their support networks. The nurse practitioner’s clinical insights combined with patient and caregiver voices provided a comprehensive view of navigating treatment, the importance of advocacy, and ongoing research efforts aimed at improving outcomes for this complex and heterogeneous disease.