Rare Cancers | Tumor

CURE’s rare cancers page is a go-to resource for oncology news and updates in the world of rare cancers Here, readers will find cancer articles, videos, podcasts, and more with expert insight into the latest treatments and research in rare cancers.

A Revolution in the Treatment of Neuroendocrine Tumors

Patients with neuroendocrine tumors have more treatment options than ever before.

Intra-Arterial Paraplatin Shows No Hearing Loss in Retinoblastoma

May 22nd 2025, 1:00pm

Article

DPOAE testing showed no hearing loss in children with retinoblastoma treated with intra-arterial paraplatin, suggesting preserved cochlear function.

Understanding the Evolution of Waldenström Macroglobulinemia Treatment

May 21st 2025, 7:00pm

Video

Dr. Shirley D’Sa discusses how treatment strategies for WM have evolved over the course of her career.

My Rare Cancer Gave Me Permission to Live

May 13th 2025, 9:00pm

Article

After walking alone in Chicago’s Cancer Survivor’s Walk, I found strength, healing and a renewed commitment to live fully and authentically — starting now.

Cancer Survivor Raises AYA Awareness After Rare Lymphoma Diagnosis

May 5th 2025, 1:00pm

Article

In this Q&A, Carly Stafford Dixon discusses her lymphoma journey, recovery with CAR T therapy, and mission to raise support for young adults with cancer.

An Expert Offers Advice and Resources for Navigating Rare Lymphoma

May 4th 2025, 6:00pm

Article

Dr. Neha Mehta-Shah shares how patients can better understand their subtype of rare lymphoma, as well as expands on the challenges these patients face.

FDA Grants Rare Pediatric Designation to Treatment With NEO100 in Brain Cancer

April 4th 2025, 3:12pm

Article

The FDA has granted Rare Pediatric Disease Designation for NEO100 in the treatment of pediatric-type diffuse high-grade gliomas, a type of brain cancer.

From Patient 3737 to Advocate: The Life-Changing Power of Clinical Trials

February 9th 2025, 3:00pm

Article

Melinda Bachini is the Chief Patient Officer at the Cholangiocarcinoma Foundation and a 15-year survivor of cholangiocarcinoma.

FDA Accepts sNDA for Welireg in Advanced Pheochromocytoma and Paraganglioma

January 29th 2025, 2:00pm

Article

The FDA has accepted a priority review sNDA for Welireg in adults and pediatric patients with advanced or metastatic pheochromocytoma and paraganglioma.

Honoring the Memory of Surviving After Cancer

January 16th 2025, 6:00pm

Article

Fifteen years after my own cancer journey, I find myself balancing hope and grief as I support a colleague newly diagnosed with cancer.

FDA Reviews NDA for Dordaviprone in Recurrent H3 K27M-Mutant Diffuse Glioma

January 4th 2025, 3:00pm

Article

Chimerix submitted a new drug application to the FDA seeking accelerated approval for dordaviprone to treat patients with recurrent H3 K27M-mutant diffuse glioma.