Ronald Chin

Ronald Chin received a diagnosis of multiple myeloma in January 2017 and has been in remission since October 2023. Catch up on all of 

Despite the overwhelming challenges of my battle with multiple myeloma, I was constantly humbled by the unexpected support and kindness from those around me. As I was going for my appointments, the superintendent of my building and the guys who worked in the adjacent parking garage would drop everything to lend a hand to carry me in my wheelchair up the three steps in my lobby. Their sturdy arms would effortlessly lift me while they shared warm smiles. Though a small gesture, it meant so much to me when even the simplest tasks felt overwhelming. Their strong embrace brought comfort and yet also stirred up feelings of guilt within me. I couldn't help but feel like a burden, relying on them for even the most minor tasks. Their kind words lifted my spirits and reminded me of my limitations. Every day was a constant struggle between wanting their support and feeling ashamed for needing it.

Their selfless acts of kindness were a bright light amidst the darkness of my illness, reminding me that there is always goodness in the world.

My dear friend and feng shui colleague who resided in the bustling borough of Brooklyn came to my aid periodically, lending her hand with the tedious chores around my apartment. Even though she didn't like doing dishes, she diligently washed all our pots and pans, plates, cups and silverware; brought fresh produce from her local market; gifted us bags of groceries; and eagerly tended to any necessary duties that my wife required help with. Though we had only known each other through our professional life, I was taken aback by Ann's unwavering compassion and willingness to assist from afar. Her presence filled our home with a warm, nurturing energy that made me grateful.

When another colleague, Lois, came for a visit, she asked, “What is Anne doing?” When we told her that she would come to help, Lois replied, “I can do that!” Then she began coming regularly and treated us with needed groceries and mundane chores…she even brought her own dish gloves!

Despite my insurance providing an allowance for special bandages, it was not enough to cover the daily changes needed for the deep, ugly wound on my back. My wife and I were constantly faced with the daunting task of affording these expensive gauzes. However, one day, we were surprised and deeply moved when one of the nurses went into the supply closet and gifted us a couple of boxes of these special bandages. My wife, Heather, was overcome with emotion, tears streaming down her face in gratitude for this act of kindness and generosity.

To get a definitive diagnosis of multiple myeloma, it is required to obtain a bone marrow biopsy. After the procedure, I was to meet with the oncology team for treatment options, which were scheduled for the following week. However, we learned that there was a strict protocol for getting a referral from a PCP (primary care physician) to receive authorization to get a diagnosis from the oncology team. At that time, we did not have a PCP!

Throughout this ordeal, my mantra became, "We believe in magic and miracles." With hope and determination, I found a PCP and my wife called our new doctor. Despite never having seen him before, he agreed to provide the necessary authorization as long as I promised to be in his office on our scheduled appointment day. It was another small victory in our battle against the insurance system protocols.

Despite the excruciating pain caused by the broken bones in my spine and the lytic lesions scattered throughout my body, each trip to the doctor's office was a challenge. A cumbersome plastic turtle shell with an extended leg brace held my body together. The rigid plastic shell and metal leg brace were a constant reminder of my broken body. I knew it was essential to go to my follow-up appointment, but the thought of getting into the car and the pain of going over each bump to see the doctor made me anxious. Part of me wanted to pretend everything was fine and avoid going altogether, but I knew deep down that I needed to make sure my body was healing correctly. After several months, it was crucial to schedule a follow-up visit. We asked if it would be possible for my doctor to come to my apartment instead. Initially, he said, “No, I don’t make house calls.” After an hour, we got a call: “Where do you live, and how’s the parking?” Over two years, he made three house calls, a rarity in today's fast-paced and impersonal world. We felt incredibly fortunate to have such a compassionate and dedicated doctor at our doorstep.

Every week, like clockwork, one of our trusted family members, Maureen, would arrive at our doorstep to meticulously sift through the paperwork and files related to our finances. She got our mail and carefully sorted through income, hospital bills, and taxes, ensuring every invoice and statement was accounted for. To this day, I continue to use the same tried-and-true method of using the gray accounting books to keep track of our financial records. Even though it is not a computerized system, it has served us faithfully for years. She also generously treated us to groceries and lunches each week.

We were blessed with the presence of family and friends who traveled from all corners of the world, including Atlanta, New Hampshire, Montreal, New Jersey, upstate New York, and even Switzerland, to lend a hand. They lovingly gave me nightly foot massages, prepared meals, tackled the daunting task of laundry, organized drawers, and offered assistance in any way possible to ease the burden of daily chores. Most importantly, they provided much-needed help for Heather, who couldn't handle everything that needed to be done and had taken on the role of my full-time caretaker without hesitation or complaint. Their selflessness and support lightened the weight on our shoulders and brought warmth to our hearts during a difficult time.

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Articles

The narrative highlights the profound impact of community support during a battle with multiple myeloma. Acts of kindness from neighbors, friends, and healthcare professionals provided essential assistance and emotional comfort. Despite the challenges of navigating healthcare protocols and enduring physical pain, the author found solace in the selfless gestures of those around them. The story underscores the importance of compassion and human connection in overcoming adversity. The unwavering support from family and friends, both near and far, played a crucial role in alleviating the burdens of illness and caregiving.

Throughout my experience with multiple myeloma, I was humbled by the unexpected support and kindness shown to me.

Unexpected Support in Tough Times With Multiple Myeloma

Ronald Chin received a diagnosis of multiple myeloma in January 2017 and has been in remission since October 2023. Catch up on all of 

After months of grueling treatment and constant battles against multiple myeloma, my body felt foreign to me. But as I slowly regained my strength and emerged from the ashes of my old life, I found a newfound purpose and determination within myself. Each morning, I woke up with renewed hope. I tackled challenges head-on, finding solace in the small victories of my recovery journey.

Every morning, I host a heartfelt community called the Bells of Hope. This daily ritual unites the members of our group as a microcosm of the world. Sometimes, I read excerpts from Mark Nepo's book, "The Book of Awakening.” Our discussions still radiate hope and inspiration, reminding us that even in the darkest times, there is still light and unity to be found. As we gather in our virtual garden, rays of warm sunlight or the rising moon cast a golden glow on our faces. It is a small moment of peace amidst the chaos and uncertainty surrounding us. It reminds us that we are not alone and can overcome challenges together. The passing of Nancy, a cherished member of our Bells family, left us all feeling lost and heartbroken. As we gather to reminisce and comfort each other, a mix of emotions fills the air — from laughter, to tears, to nervous chatter. At this moment, we cling to each other for support and find solace in a glimmer of hope and positivity, determined to face whatever challenges lie ahead.

Amid noisy gatherings and bustling activities, I sought solace in moments of quietude. With my pen in hand, I poured my thoughts and inspirations onto my small linen journal book. I reconnected with my family's deep-rooted history through blogging and writing memoirs. The words flowed freely, like a healing balm for my soul, providing closure and soothing wounds I didn't even know existed. As each page filled with my story, I discovered a newfound sense of kinship that had long evaded me.

Group photo with Bells of Hope family–Nancy, seated at far right, is wearing a colorful dress.

As I took a deep breath and released a powerful note, a feeling of achievement washed over me. Singing had become my physical therapy, helping me rebuild my collapsed lungs after the devastating effects of my shrunken body and toxic medication. My wife gifted me weekly singing lessons with her sister, Laurel. But with each song, I couldn't help but feel conflicted.

The melodies were uplifting and freeing, but they also reminded me of the arduous journey I had been on. As I belted out "Moon River," memories of playing it on my clarinet in high school flooded back. When I sang Frank Sinatra's "My Life," the lyrics struck a chord as I reflected on my life in remission. Music had become my medicine, healing both body and soul, but it reminded me of the battle I had fought to get here. Yet through every note and every key change, my resilient voice echoed my determination to overcome any obstacle that came my way.

I turned to the soothing art of cooking to ensure my physical and mental well-being. With care and precision, I crafted meals using only the freshest organic ingredients. Every dish was a canvas for my creativity and experimentation, as the aromas and flavors filled my kitchen with warmth and comfort. Last week, I made a pear oatmeal tart and lemony cod & potato stew. I am considering the next stir-fry dish with farm-fresh broccoli, leeks, string beans and carrots.

Cooking became more than just a means of sustenance; it was a form of self-care and nourishment for my body and soul.

Amidst the chaos and uncertainty in my life, one decision has remained constant — becoming a Qigong teacher. This ancient practice has brought me physical strength and an unexpected sense of peace and balance. I used to be consumed by external factors like feng shui. Still, now I focus on finding inner harmony through the fluid movements and controlled breathing of Qigong. Yet, as much as it brings me tranquility, becoming a Qigong teacher has also brought internal conflict. Being in harmony with nature has always brought me a sense of inner peace, but lately, I can't shake off this feeling of unease. Despite the positive changes Qigong has brought to my physical and spiritual well-being, I can't help but question if it's truly enough. Is there more to life than this? A part of me yearns for something new and unknown, while another part of me clings to the familiar comfort of routine and tradition.

A journey through recovery from multiple myeloma reveals a newfound purpose and determination. The protagonist finds solace in community gatherings, writing, music, cooking, and Qigong. These activities provide healing, connection, and self-discovery, despite the challenges faced. The Bells of Hope community offers support and inspiration, while writing and music serve as therapeutic outlets. Cooking becomes a form of self-care, and Qigong brings physical strength and peace. However, internal conflict arises as the protagonist questions if these practices are enough, yearning for something beyond the familiar routine.

I rediscovered myself through community, writing, music and cooking after my journey with multiple myeloma.

Rising from Ashes: Rediscovering Myself After Multiple Myeloma

Looking back on 2024, I am struck by how much the year has been a milestone in my life. Seven years have passed since I was diagnosed with multiple myeloma and was given the hope of returning to my daily routine within a year. It has been a grueling journey, but now I can finally say that I feel like my old self again, even though my new normal diﬀers from before.

A pivotal moment in my journey came when I received a phone call to do an in-person presentation for the Jacques Marchais Museum of Tibetan Art in March. The excitement and nervousness bubbled inside me as I prepared to speak about Feng Shui, my first talk since 2016. Memories flooded back of my previous speaking engagement in Tiradentes, Brazil, where I had felt fragile on the stage, and my bones weakened from the disease. But now, standing before an eager audience, I felt anxious and alive. My adrenaline surged through my veins, propelling me confidently and enthusiastically. Again, I am grateful for this opportunity to share my knowledge, and it solidified my passion for public speaking.

The news of my successful lecture spread, and I was soon invited to present for the Chinatown Rotary Club in April. As I walked into the packed restaurant, the excitement in the air was palpable. The room was buzzing with energy and anticipation. Despite feeling tired before the presentation, my fervor kicked in as soon as I stepped in front of the room. All the guests hung on my every word as I shared my insights and experiences. Just when I thought it couldn't get any better, the Q&A session surpassed all expectations. The audience's engagement and insightful questions left me energized and grateful for the opportunity to share my knowledge on the topic.

Following the presentation, I was approached by a journalist named Mengxi. She exuded a calm and curious energy that immediately drew me in. She listened to my story and wanted to capture it for a documentary she was working on. Without hesitation, I agreed, intrigued by the opportunity to share my story. Over the next few months, Mengxi became a frequent companion, following me around as we delved into my world. She captured footage of me in my oﬃce sanctuary, at a physical therapy session demonstrating my progress against the eﬀects of multiple myeloma, a feng shui consultation where ancient traditions were woven into modern-day practices and even capturing a discussion for feng shui ideas to improve NYC Chinatown with the CEO of the Chinatown Partnership. The experience was not only a boost to my self-esteem but also filled with meaningful conversations and moments of reflection.

In support of the International Myeloma Foundation fundraiser, amid the sea of colorful t-shirts and lively chatter, I found my fellow walkers from the Bloodhounds (get it... blood cancer, bloodhounds hunting… for a cure!). Together, we trekked along the Hudson River for one and a half miles, passing iconic New York City landmarks. After the fantastic event, I was invited to join the group for a delicious brunch on the bustling streets of the Upper West Side. As we chatted and laughed over our meal, I couldn't help but feel grateful for the camaraderie and sense of accomplishment that filled the air. I did a total of six and a half miles that day – an incredible accomplishment.

The crisp autumn air felt invigorating as I took my first solo taxi ride to the MET for the opening exhibition of “Materialized Space: The Architecture of Paul Rudolph.” As the car service drove me to the museum, the city buzzed around me, with people rushing by and car horns honking in a symphony of chaos.

Working for the late master Paul Rudolph was both a privilege and a challenge. It brought back memories of a time filled with emotions and heartfelt bonds with friends and colleagues. But it also reminded me of the pressures and demands of being under his tutelage. Seeing familiar faces from that era stirred up a mix of nostalgia and warm memories within me.

Another memorable moment was taking the subway for the first time since 2019!

It began in the afternoon when my friend Seth picked me up at my apartment. We put my rollator in the trunk of a taxi to the Lower East Side to see an architectural exhibition.

After enjoying drawings and talking to the gallery owner, I took Seth to soak in the sights and sounds of Chinatown. We visited the largest Buddhist temple in NYC and wandered through narrow streets lined with colorful storefronts and the aroma of steaming dumplings and fragrant teas wafting through the air. Eventually, we made our way to the E line from Spring Street to 34th Street; Seth kindly carried my rollator down the stairs while I followed behind, settling into the last car as it rattled along the tracks. The subway ride was exhilarating for me, with the rhythmic chugging of the train and the murmur of voices filling the car. As we arrived at our destination, it was a perfect afternoon spent exploring a bustling part of the city with a dear friend by my side.

After a long and challenging journey, 2024 is finally the year of my rebirth. With my illness in remission and newfound confidence to explore on my own, I eagerly anticipate the upcoming Chinese New Year of the Snake. The vibrant colors and scents of the forthcoming celebration fill my senses, reminding me of the endless possibilities that lay ahead. This year marks a new beginning and a chance to rediscover myself and embrace all life oﬀers. As I bask in the energy of this auspicious year, I feel renewed and ready to embark on a journey of self-discovery and growth.

The year 2024 marked a significant milestone in the life of a multiple myeloma survivor, who, after seven years, feels rejuvenated and ready to embrace a new normal. Key events included delivering public presentations, participating in a documentary, and engaging in community activities, all of which contributed to a renewed sense of purpose and confidence. The year culminated in a sense of rebirth, with the individual looking forward to the Chinese New Year of the Snake, symbolizing new beginnings and the potential for personal growth and exploration.

2024 was a year of resilience after a myeloma diagnosis, marked by a return to public speaking, a documentary filming experience and a fundraising walk.

A Year of Resilience: Looking Back After a Myeloma Diagnosis

Many symptoms could be early warning signs of multiple myeloma. One of the most common is persistent bone pain, usually felt in the back, ribs or hips. Along with bone pain, individuals may experience fatigue, weakness and difficulty breathing.

I first noticed rib pain and sciatica in September 2016. Later that year, as I stepped onto the stage at a conference in Brazil, my body felt fragile, reminding me of the long-distance travel we had endured to get here. Even getting in and out of the car was challenging; my muscles strained from carrying heavy luggage and navigating crowded airports. The physical discomfort reminded me of the toll overseas traveling can take on a person's body.

However, it wasn't until January 2017, when I experienced shooting pain down my left leg, that I realized something was seriously wrong. I had lytic lesions throughout my body, and it was painful even to sneeze. Lytic lesions refer to areas of bone destruction that result in holes.

Multiple myeloma can also lead to a collapsed backbone in the spine, which can put pressure on the spinal cord and cause further complications. Unfortunately for me, five vertebrae quickly collapsed within weeks.

The elusive origin of myeloma remains a mystery, leaving those affected searching for answers. Deep within the bones lies the bone marrow, a vital source for creating blood cells. But something insidious occurs, transforming healthy plasma cells into malignant myeloma cells. As an architect frequently working on construction sites, it is possible that this environment may have played a role in developing myeloma. Yet, another factor cannot be disregarded — the overwhelming grief and stress from losing my mother in 2015 may have weakened my immune system, leaving me vulnerable to this disease.

The diagnosis is typically confirmed through a biopsy, an invasive procedure in which a specialized needle is used to extract a small sample of the bone marrow. This vital tissue, which produces all of the body's blood cells, is usually obtained from the pelvis. I underwent this procedure while confined to my hospital bed. My most recent bone marrow biopsy was performed in June 2023, revealing no trace of cancer in my body and bringing a wave of relief and hope for the future.

There are many notable figures who were diagnosed with multiple myeloma.

According to a new biography titled “Elizabeth: An Intimate Portrait”by Gyles Brandreth, it was revealed that Queen Elizabeth II may have had multiple myeloma before her death. A Newsweek article confirmed that she had this type of cancer before her passing. In October 2021, the queen experienced health issues that caused her to miss public appearances. In the next year, she faced mobility challenges and eventually passed away in September 2022. Her official cause of death is listed as "old age" on her death certificate. She died at the age of 96.

Tom Brokaw, aged 84, is a retired journalist and author known for his work on network news. In August of 2013, he was diagnosed with multiple myeloma. Over a year later, Brokaw announced that his cancer was in remission. It is uncertain whether he is currently undergoing any maintenance treatment. In his book, “A Lucky Life Interrupted: A Memoir of Hope,” Brokaw recounts his experience with cancer.

Geraldine Ferraro was a notable figure in American politics, known for her roles as a politician, diplomat and lawyer. She gained even more attention when she became the Democratic Party's nominee for vice president during the 1984 presidential election alongside Walter Mondale. Sadly, in 1998, Ferraro was diagnosed with myeloma and died from the disease in 2011. She had gone to Mass General in Boston for treatment to manage her pain caused by a fracture, a common complication of multiple myeloma. Unfortunately, she contracted pneumonia and was unable to recover. She passed away at the age of 75.

American Secretary of State, Colin Powell.

Sam Walton, the American businessman who founded Walmart.

Eppie Friedman better known by the pen name Ann Landers and

Mickey Hargitay, 1955 Mr. Universe who married actress Jayne Mansfield.

According to medical professionals, multiple myeloma is a daunting and incurable disease. However, proper treatment and care can be effectively managed for years. After receiving three different lines of chemotherapy (

), I am now undergoing maintenance treatment with Darzalex (daratumumab). At my most recent appointment with my oncologist, she described my condition as “boring," a welcome label in the world of cancer. My blood results show no changes, and there are no signs of cancer, not even at the cellular level (also known as minimal residual disease or MRD). This means that I am in complete remission.

Through my involvement in various support groups with fellow warriors, I have learned that individuals with myeloma can live for years while undergoing treatment. The advancement of treatments is ongoing and constantly improving, providing hope for many. In some cases, those with multiple myeloma experience remissions lasting for years. Some choose not to continue with treatment, instead finding solace in their path toward healing. The resilience and courage displayed by these individuals are a testament to the strength of the human spirit in the face of adversity.

Reflecting on the pain I experienced before my diagnosis of multiple myeloma, I realized how important it was to pay attention to the related symptoms. 

Ronald Chin

Unexpected Support in Tough Times With Multiple Myeloma

Rising from Ashes: Rediscovering Myself After Multiple Myeloma

A Year of Resilience: Looking Back After a Myeloma Diagnosis

Understanding Multiple Myeloma Symptoms

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