How Can Self-Advocacy Improve Care for Newly Diagnosed Patients?

Newly diagnosed patients with cancer should embrace self-advocacy as a vital part of their care, according to Staci Kirk, a six-time cancer survivor and founder of the Stiletto Boss Foundation.

In a video interview with CURE, she shares how trusting your body and speaking up — especially when something doesn’t feel right — can lead to better communication and improved outcomes. Kirk reflects on her own experience and urges others to ask questions, bring someone with them to appointments, and connect with local groups.

Her nonprofit organization helps fill critical gaps beyond treatment by creating safe spaces for connection, providing ongoing emotional support, and equipping individuals with the tools they need to navigate the often-overlooked challenges that come with life after a cancer diagnosis.

Transcript

What advice would you give to someone who's newly diagnosed and unsure how to speak up for themselves in a medical setting?

I really want to make sure that people understand self-advocacy. You're going to have a care team, you're going to have people to support you, but there's nothing like self-advocacy. If something is wrong, say something. If you don't feel heard, keep saying something.

I believe that I would still have my right breast if I had pushed harder. I always say that. But a lot of times we get white coat syndrome. We don't ask the right questions because we don't know the right questions. And then we don't have anybody to call to support us in that.

Reach out, talk to people, try to connect with groups—like my group or other groups in your community — and really say, “Hey, what should I be asking?” Or “Could you go with me?” Or “Could you help me jot down a few questions?” Because no one is going to advocate for you like you. You know your body, trust your body, and speak up for yourself.

Transcript has been edited for clarity and conciseness

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