Hope in a Dark Place

June 16, 2015
Susan F

Susan F was unwillingly thrust into the world of metastatic breast cancer after a routine mammogram in 2012. She uses her powers of persuasion, knowledge and writing for good in hopes of helping others similarly affected. She is a patient advocate, volunteering with METAvivor (metavivor.org), a volunteer organization raising funds for research in metastatic breast cancer.

Extraordinary Healer®, Extraordinary Healers Vol. 8, Volume 14, Issue 1

HOPE IS HARD TO FIND IN A CANCER WARD, especially when the news is stage 4 metastatic breast cancer to the liver.

HOPE IS HARD TO FIND IN A CANCER WARD, especially when the news is stage 4 metastatic breast cancer to the liver. But hope is exactly what oncology nurse Meg Jewett has given me. I was diagnosed with stage 4 breast cancer from the get-go in February 2012. At first, my oncologist believed I was stage 2. My breast MRI showed no lymph node enlargement, and I was a young 47-year-old woman, so there was no reason to believe the cancer had spread. But a pre-treatment bone scan and CT scan showed otherwise. My liver was covered with lesions. As soon as I received the news, I began to split up my belongings in my head and plan my funeral.

IT WAS MEG WHO SAT DOWN NEXT TO ME, as I was receiving one of my first of 20 weekly paclitaxel infusions, and told me, “I know someone who is still alive 30 years later after a diagnosis of advanced cancer.” And it has been Meg who has repeated that to me over and over again, as I’ve struggled to find hope in a dark and difficult situation. Every week during my infusion, Meg met me with humor and a practical yet positive approach to cancer treatment. Meg was the one who instructed me on the vitamins to take to help alleviate my building neuropathy. It was Meg who reassured me that the side effects I was experiencing were normal and that I’d get through them. The lesions on my liver dropped to just scar tissue after five months of treatment, and I was stable on Herceptin for almost two years. When I finished the rounds of paclitaxel, I wanted to thank Meg by taking her out for a wonderful meal, but I had to settle for bringing food to her at the cancer center because she was too

busy treating other patients.

In December 2013 the cancer came back, again to my liver. And again I dropped into hopelessness. Thankfully, Meg had previously talked about her experience during the clinical trials for Kadcyla, telling me how well the women on this drug did and how easily they tolerated it. With this progression, I was terrified to go through yet another round of knock-me-down chemo. Five months of weekly paclitaxel had almost disabled me and the resulting isolation sent me into a deep depression.

As I was coming out of the examining room, after receiving the news of my progression, I saw Meg in the hallway. Wordlessly I walked over to her, hugged her and began to cry. Meg has become a steadying point, a buoy to grab onto in these very choppy cancerous seas. That hug gave me a glimmer that maybe things will be OK. I started Kadcyla two months ago.

Hope. It’s such a simple word, but yet so hard for many to give. I not only trust Meg’s skills and knowledge as an oncology nurse, I trust her ability to always, always give me hope, even when things get really bad. As Dr. Bernie Siegel puts it, medical staff can “deceive people into health” by simply treating them like they’re going to live. And Meg has consistently treated me like I’m going to live. The best part is that Meg believes it herself. I can feel it; she believes I’m going to live. I don’t care if either of us is deceiving ourselves. It matters. Words and actions matter.

Believing that I’m going to live keeps me going from day to day. And every three weeks I know I’ll see Meg for my next dose of hope and Kadcyla. Meg has become a key member of my medical team, as important to me as my oncologist. And I am sure that Meg’s continuing belief in my health has helped to keep me alive as surely as the chemotherapy has.