End Brain Cancer

People can help EBCI reach their goal of $20,000 dollars raised for GiveBIG 2025 by giving at endbraincancer.org/donate: © stock.adobe.com.

Professor Richard Scolyer, a top doctor and leading melanoma pathologist, was diagnosed with Glioblastoma (GBM) brain cancer in July of 2023 and told he had only a few months to live. However, Richard didn't give up. Using everything he knew about melanoma science, Richard and his team used pre-surgery combined immunotherapy and a personalized cancer vaccine, the first in the world to do so.

Patients like Richard need your support in order to access the specialists, advanced treatments, and devices they need. Give today to support the End Brain Cancer Initiative's (EBCI’s) mission and help patients and families. Learn more about Richard's story at https://www.youtube.com/watch?app=desktop&v=2D9_mlLZPdI.

Support from individuals is vital for the End Brain Cancer Initiative to continue helping patients and families facing brain cancer, brain tumors, and metastatic disease to the brain. Gifts will support free access to DIRECT support from EBCI, a wealth of resources through the EBCI Website and the EBCI Disease Education Mobile App, and patient disease education online events. People can help EBCI reach their goal of $20,000 dollars raised for GiveBIG 2025 by giving at endbraincancer.org/donate.

Gifts to EBCI for GiveBIG will also fuel the nonprofit’s advocacy efforts, giving EBCI the ability to advocate for policies that increase patient access to specialists, advanced treatments, and devices. One such policy is the Bolstering Research And Innovation Now (BRAIN) Act (H.R.2767/ S.1330), which aims to advance the quest to defeat brain tumors, once and for all, by increasing research funding, fostering collaboration, promoting critical awareness efforts, and supporting innovations in and access to care.

GiveBIG 2025 is all about that good feeling we get when we show up for others, whether it’s a family member, a neighbor, or a local nonprofit we care about. People can make good things happen at the End Brain Cancer Initiative by giving to help patients and families facing brain cancer, brain tumors, and metastatic disease to the brain.

The End Brain Cancer Initiative is a 501(c)3 non-profit patient organization focused on disease education, awareness, outreach and increasing patient access. The End Brain Cancer Initiative, formerly known as the Chris Elliott Fund, is dedicated to ensuring that all patients diagnosed with brain cancer, a brain tumor, or metastatic disease to the brain have equal access to advanced diagnostics, treatments, specialists, and clinical trial participation. We believe that IMMEDIATE ACCESS to these options provides this patient community with the best HOPE for survival and sustained quality of life. We partner with industry, patients, researchers, advocacy groups, medical teams, hospital networks and others to educate patients and their caregivers so they can have empowered conversations with medical teams. Learn more about and support the End Brain Cancer Initiative’s work and mission at EndBrainCancer.org.

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Professor Richard Scolyer, a renowned melanoma pathologist, was diagnosed with Glioblastoma in 2023. Despite a grim prognosis, he utilized his expertise to undergo innovative treatments, including pre-surgery combined immunotherapy and a personalized cancer vaccine. The End Brain Cancer Initiative (EBCI) supports patients like Richard by providing access to specialists, treatments, and resources. Donations to EBCI aid in advocacy efforts, such as the BRAIN Act, and help achieve fundraising goals like GiveBIG 2025. EBCI is committed to ensuring equal access to advanced care for brain cancer patients.

People can help EBCI reach their goal of $20,000 dollars raised for GiveBIG 2025 by giving at endbraincancer.org/donate.

Support Patient Access and Education with the End Brain Cancer Initiative for GiveBIG 2025

Each May, for over a decade, the End Brain Cancer Initiative (EBCI) has presented the National HOPE Award to a brain cancer patient who deeply inspires us: © stock.adobe.com.

Each May, for over a decade, the End Brain Cancer Initiative (EBCI) has presented the National HOPE Award to a brain cancer patient who deeply inspires us with their courage and story. EBCI established this patient disease education initiative and award to highlight exceptional people who have done exceptional things during their brain cancer journey, all while inspiring others.

The deadline for submitting HOPE Award nominations is April 16th, 2025. To submit a nomination, people can visit https://endbraincancer.org/hope-award-nomination/. 

Patrick “Paddy” O'Donnell is the 2024 National HOPE Award recipient. Paddy was a 20-year-old collegiate ice hockey goaltender at the University of Utah when he had a seizure. He woke up in the Neuro ICU connected to tubes and monitors wondering what happened. A biopsy revealed he had Glioblastoma (GBM) and three tumors. Paddy was nominated by his mother, Anne O'Donnell. "Paddy had to create his own HOPE and sought answers and second opinions about his treatment," she said. "End Brain Cancer Initiative was vital in our search, at the most critical time, availing us of options and direct contact with experts in the field whom Dellann knew personally."

The 2025 HOPE Award recipient will be announced during the End Brain Cancer Initiative's Know All Your Treatment Options (KAYTO25) online patient disease education event/webinar on May 16th, 2025. This free annual online event is designed specifically for members of the brain tumor, brain cancer, and metastasized brain tumor community to hear directly from top specialists, including researchers, in the field about advanced and FDA approved treatment options, clinical trials, devices, diagnostics, etc. that they may not have heard about and to “DIRECTLY CONNECT” this patient population to many of these specialists. The event is free to attend due to corporate sponsorships, but pre-registration is required: endbraincancer.org/know-all- your-treatment-options-2025/.

To support/donate to the End Brain Cancer Initiative’s increased access and health delivery for patients, mission, services and programs, please visit EndBrainCancer.org. 

The End Brain Cancer Initiative (EBCI) is a 501(c)3 non-profit patient advocacy organization focused on disease education, awareness, outreach, increasing patient access and improving Standard of Care. The End Brain Cancer Initiative, formerly known as the Chris Elliott Fund (CEF), is dedicated to ensuring that all patients diagnosed with brain cancer, a brain tumor, or metastatic disease to the brain have equal access to advanced diagnostics, treatments, specialists, and clinical trial participation. We believe that IMMEDIATE ACCESS to these options provides this patient community with the best HOPE for survival and sustained quality of life. We partner with industry, patients, researchers, advocacy groups, medical teams, hospital networks and others to educate patients and their caregivers so they can have empowered conversations with their medical teams. Learn more about the End Brain Cancer Initiative at EndBrainCancer.org.

The End Brain Cancer Initiative (EBCI) annually presents the National HOPE Award to a brain cancer patient who inspires with their courage and story. The 2024 recipient is Patrick “Paddy” O'Donnell, a collegiate ice hockey goaltender diagnosed with Glioblastoma. The 2025 recipient will be announced at the KAYTO25 event, which connects patients with specialists and provides information on advanced treatments. EBCI, a non-profit organization, focuses on disease education, awareness, and increasing patient access to advanced diagnostics and treatments, aiming to improve survival and quality of life.

Nominations Open for the End Brain Cancer Initiative’s 2025 National Patient Disease Education Initiative and HOPE Award

Registration is now open for the 2025 Know All Your Treatment Options (KAYTO25) online patient disease education event/webinar: © stock.adobe.com.

Registration is now open for the 2025 Know All Your Treatment Options (KAYTO25) online patient disease education event/webinar

Registration is now open for the 2025 Know All Your Treatment Options (KAYTO25) online patient disease education event/webinar, hosted by the End Brain Cancer Initiative (EBCI), on Friday, May 16th, 2025, from 11 AM to 2 PM Pacific Time.

This free annual online event is designed specifically for members of the brain tumor, brain cancer, and metastasized brain tumor community to hear directly from top specialists, including researchers, in the field about advanced and FDA approved treatment options, clinical trials, devices, diagnostics, etc. that they may not have heard about and to “DIRECTLY CONNECT” this patient population to many of these specialists. The event is free to attend due to corporate sponsorships, but pre-registration is required: endbraincancer.org/know-all-your-treatment-options-2025/.

KAYTO attendees will hear from multiple presenters, including a representative from Telix Pharmaceuticals, one of the presenting sponsors of this event. Telix is at the forefront of developing advanced imaging agents to improve the diagnosis and management of brain cancers, particularly gliomas. Telix’s brain cancer program comprises an investigational therapy and an investigational PET imaging agent – both small molecule-based. The company aims to provide clearer and more specific imaging results, aiding in the accurate differentiation between tumor progression and treatment-related changes.

Visit endbraincancer.org/know-all-your-treatment-options-2025/ to learn more about sponsorship opportunities to support this patient disease education online event.

Telix is a biopharmaceutical company focused on the development and commercialization of therapeutic and diagnostic radiopharmaceuticals and associated medical technologies. Telix is developing a portfolio of clinical and commercial stage products that aims to address significant unmet medical needs in oncology and rare diseases. Visit http://www.telixpharma.com/ for further information.

To support/donate to the End Brain Cancer Initiative’s increased access and health delivery for patients, mission, services and programs, please visit EndBrainCancer.org

The 2025 Know All Your Treatment Options (KAYTO25) online event, hosted by the End Brain Cancer Initiative, will take place on May 16th, 2025. This free event aims to educate the brain tumor community about advanced treatment options and connect them with specialists. Sponsored by companies like Telix Pharmaceuticals, the event will feature presentations on innovative imaging agents for brain cancer management. The End Brain Cancer Initiative, a non-profit organization, focuses on improving patient access to diagnostics, treatments, and clinical trials, enhancing survival and quality of life.

Registration Open for the 2025 Know All Your Treatment Options Webinar Hosted by the End Brain Cancer Initiative

The End Brain Cancer Initiative is currently seeking Primary Central Nervous System Lymphoma patients and care partners to participate in an online roundtable discussion: © stock.adobe.com.

The End Brain Cancer Initiative (EBCI) is currently seeking Primary Central Nervous System Lymphoma (PCNSL) patients and care partners to participate in an online roundtable discussion on April 11, 2025, from 11AM to 12:30PM Pacific Time.

The PCNSL Online Roundtable will help further resources and education provided to this patient population by doing a deep dive into the results of their recent PCNSL patient and care partner survey. The roundtable, sponsored by Ono Pharmaceutical, will be moderated by Dellann Elliott Mydland, President and CEO of the End Brain Cancer Initiative.

Patients and care partners interested in participating in this discussion should fill out the interest form at endbraincancer.org/pcnsl before March 31, 2025. Qualifying participants will be compensated $75 for their time.

Ono Pharmaceutical Co., Ltd., headquartered in Osaka, is an R&D-oriented pharmaceutical company committed to creating innovative medicines in specific areas. Ono focuses its research on oncology, immunology, neurology, and specialty area with high medical needs as priority areas for discovery and development of innovative medicines. For further information, please visit the company’s website at https://www.ono-pharma.com/en.

The End Brain Cancer Initiative (EBCI) is organizing an online roundtable for Primary Central Nervous System Lymphoma (PCNSL) patients and care partners on April 11, 2025. This event aims to enhance resources and education for this patient group by analyzing recent survey results. Sponsored by Ono Pharmaceutical, the roundtable will be moderated by EBCI's President, Dellann Elliott Mydland. Participants will receive $75 for their involvement. EBCI is a non-profit focused on improving access to advanced diagnostics and treatments for brain cancer patients.

End Brain Cancer

Support Patient Access and Education with the End Brain Cancer Initiative for GiveBIG 2025

Nominations Open for the End Brain Cancer Initiative’s 2025 National Patient Disease Education Initiative and HOPE Award

Registration Open for the 2025 Know All Your Treatment Options Webinar Hosted by the End Brain Cancer Initiative

Primary Central Nervous System Lymphoma Patient and Care Partner Roundtable Hosted by the End Brain Cancer Initiative

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