MPN Heroes®

Putting an Emphasis on Patient Collaboration in MPN Treatment

January 6th 2025, 2:00pm

Video

Dr. Richard “Rick" Winneker discussed advice that he would provide to patients faced with a myeloproliferative neoplasm diagnosis.

A Commitment to New Therapies for MPN Despite Scientific Challenges

January 2nd 2025, 2:00pm

Video

One research noted the persistent efforts to develop new treatments for myeloproliferative neoplasms (MPNs), a commitment that remains strong despite some setbacks.

A Patient's Self-Advocacy Leads to an Essential Thrombocythemia Diagnosis in Her 30s

January 1st 2025, 3:00pm

Video

While in nursing school, a patient recognized potential signs of a blood disorder and advocated for further testing, leading to an early diagnosis of essential thrombocythemia.

Asking Questions About Treatment Options for MPN

December 31st 2024, 10:00pm

Video

A patient with MPN urges others to ask questions about treatment options, which may also include inquiring about clinical trials.

Empowering Patients With Cancer Through Clear Clinical Trial Communication

December 30th 2024, 10:00pm

Article

A clinical trial manager emphasizes the importance of a phased approach to educating patients about complex protocols and potential side effects.

Driven by Experience: How a Caregiver Became an MPN Advocate

December 27th 2024, 2:00pm

Video

An MPN advocate used his personal experiences to inform his dedication to patient-centered research and support programs for patients.

Empowering Patients With MPNs to Participate in Clinical Research

December 26th 2024, 10:00pm

Video

A patient advocate discusses the difficulties of finding and participating in clinical trials for MPNs, and the impact on research and treatment development.

The Power of Voice in MPN Management

December 24th 2024, 10:00pm

Video

One of this year’s MPN Heroes® talks about the importance of a supportive care team, especially since every patient with MPN presents differently.

MPN Outcomes Have Improved in the Last 20 Years

December 28th 2023, 2:00pm

Video

A doctor reflected on what it was like treating patients with myeloproliferative neoplasms years ago and how much treatments have improved.

Community Is ‘One of the Biggest Assets’ for Patients With MPNs

December 27th 2023, 2:00pm

Video

An expert explained the benefits of patients with myeloproliferative neoplasms finding a community of people with similar diagnoses.