MPN Heroes®

Community Is ‘One of the Biggest Assets’ for Patients With MPNs

December 27th 2023, 2:00pm

Video

An expert explained the benefits of patients with myeloproliferative neoplasms finding a community of people with similar diagnoses.

MPN Caregiver Make a ‘Limited World as Fun as It Could Be’

December 24th 2023, 2:00pm

Video

When caring for his wife with myelofibrosis, Ed Bartholemy focused on making her life as fun and positive as possible, despite her limitations.

CURE Celebrates 8 Honorees at MPN Heroes Event

December 9th 2023, 1:57pm

Article

CURE® honored eight MPN Heroes, which ranged from medical professionals to patients and caregivers, on the contributions they made in the field.

During Cancer, Do What Brings You Joy, Vanessa Bayer Says

May 12th 2023, 9:00pm

Video

When going through cancer, former ‘Saturday Night Live’ cast member Vanessa Bayer found comedy. Now, she urges others to find what brings them joy.

MPN Survivor Urges Clinicians, ‘Break (Info) Down to Me Where I Can Understand It’

April 21st 2023, 9:00pm

Video

Jessica Kuhns, a patient living with a myeloproliferative neoplasm, makes it a point to ensure she can understand what doctors are telling her, so that she can take that knowledge and tell other people.

CURE® Salutes 8 Individuals’ Efforts During 10th Annual MPN Heroes® Program

December 10th 2022, 2:53pm

Article

CURE® celebrated the work of eight individuals who go above and beyond to better the lives of people living with myeloproliferative neoplasms, a group of blood cancers.

‘Listen to Your Patient,’ Says Cancer Caregiver

July 22nd 2022, 7:30pm

Video

A cancer caregiver recommends that other caregivers become well-versed in their loved one’s disease.

Cancer Caregiver Realizes the Impact of His Advocacy Work

July 18th 2022, 7:00pm

Video

When Jeff Bushnell was contacted by a patient with an MPN who lived in the Philippines, he realized how his advocacy work was impacting patients around the globe.

Oncologist Who Specializes in Treating Rare Blood Cancers ‘Learns from Patients Every Day’

July 15th 2022, 9:00pm

Video

An expert from the Tisch Cancer Institute discusses how he learns from patients and their caregivers, and how their insight has helped lead advancements in the treatment of myeloproliferative neoplasms, a group of rare blood cancers.

‘I Want to Die With This, Not Because of It,’ Says Survivor of Rare Blood Cancer

July 8th 2022, 9:00pm

Video

Kerry Fraser, a survivor of a myeloproliferative neoplasm and retired NHL referee, explained how he came to be diagnosed, and his hopes for the future of the group of rare blood cancers.